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The “T” in the road, a decision, and a broken elbow

If you follow my Facebook page, you know I’ve been suffering for several weeks from intense spine pain. I saw my rheumatologist Wednesday and was diagnosed with spondylitis, which is inflammation of the spine. As of right now, my lower spine and neck are the areas most effected (although the pain radiates out to other areas). The pain is so intense I’ve been physically ill and have lost 8 lbs over the last 5 weeks. NOT that I’m complaining about the weight loss, but weight loss due to terrible pain and disease is definitely not ideal.

I’ve often said I would never use biologic medications to treat my psoriatic arthritis, but what a difference a few months can make in the life of someone living with an autoimmune disease. What a difference a few months have made in MY life. Autoimmune diseases are often completely unpredictable, as I’m experiencing first hand. My husband and I are in agreement that I can’t continue experiencing pain at this level. Pain takes its toll on a family, and plain and simple, my family is suffering… I’m suffering.

This wasn’t a decision I wanted to make, but it was one I had to. If the spondylitis is left untreated, my spine could suffer permanent deformities. My spine is one part of my body I don’t want to mess with. I’m 32 years young. I have two little girls and a husband who depend on me. I have the rest of my life to live, and I want to live it as healthy and pain free as possible.

This past Wednesday at my rheumatologist’s office, I had my first injection of Humira. I will continue to give myself Humira injections every 2 weeks. Since Humira suppresses the immune system, making me more susceptible to infection, I feel it’s extremely important I try to keep my body as healthy as possible to process this new medication. My eating habits will not change.

I really don’t know how I feel about all of this… I do know I’m numb and completely overwhelmed. As soon as my husband and I left my rheumatologist appointment, we learned our oldest daughter, Kylie, had fallen off a teeter totter at my brother’s house and landed on her elbow. That night we took her to the ER, and were told it’s fractured. I’ve been so wrapped up in taking care of Kylie and what she’s going through that I haven’t had a chance to process everything. I’m just waiting for it to hit me, and I’m sure when it does, I will require several tissues and some really good gluten and dairy free ice cream.

“My health may fail, and my spirit may grow weak, but God remains the strength of my heart; he is mine forever.”  Psalms 73:26

Love,
Megan

A kitchen tip for keeping spinach fresh (and saving money) for smoothies!
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Bernard

Monday 9th of December 2013

Hi Megan,

Many people with painful conditions have benefited from 'earthing'. Simply making sure you're body is the same charge as the earth. Here's a documentary about it, probably you have seen it. It's from your part of the world.

Here's an article about it

http://shiftfrequency.com/dr-mercola-documentary-grounded/

Cheers

Thanks for sharing the bread recipies, I will try one.

Bernard from Australia

Megan

Monday 9th of December 2013

Hi Bernard, Thank you for sharing the article! I'll check it out. ;) Megan

Cindy Monroe

Tuesday 13th of November 2012

If at all possible, try Red Light Therapy, I have RA and Fibro. It has helped me not to totally fall apart. I get mine at the local Tanning Salon. Cindy Lou

Nicole

Friday 29th of June 2012

I so appreciate all the information you post on your blog. I have the same types of arthritis as you but haven't reached the point where I need lots of medication for it. I also vowed to myself that I would never take biologics but am encouraged by your experience with them. Thank you so much!

MAID in Alaska

Monday 4th of June 2012

Thank you everyone for all of your comments, sharing your personal stories, well wishes, etc. I hoped to respond to each of you individually, but unfortunately time and life in general have prevented me from doing that. I wanted you all to know that I appreciate you - and all of your comments. Thanks again for all of your support! Love and Hugs, Megan

aceso

Wednesday 23rd of May 2012

I have PA. I've had it since I was 14 years old. I've always been able to deal with the ups and downs it has given me. I'm tough you see. I work hard to stay healthy and I remain positive in the face of adversity. I always get the best of my illness. Till now. Now things are different... and I am a bit hopeless.

In the past 2 months I've barely been out of bed. I've finally got a new specialist here in the UK (Just moved here 3.5 months ago) and for the first time I had Biologics suggested to me... I think in Canada (where I hail from) they were just out of my price range because my specialist there wanted to keep me on Methotrexate.

I've been on Methotrexate for 6 years...my flare-ups have become more and more frequent and seem to last longer... recently I started experiencing pain in joints I had never had it in before... my rib cage for example.

I would really appreciate if you detail your experiences with this new medication... I am terrified to take it... but I have lost my job and being far from my family... my husband is my soul carer. He works long hours to pay our bills since I am no longer contributing which leaves me home alone unable to do much (having a shower is quite a feat)... We need a solution. I want to get my career back... I want to be able to have kids... I know not everyone gets to have that... but if taking Biologics will get me those things... then I will do it. Im very passionate about living life to the fullest (who isn't?) so I am willing to take the steps necessary.

Thank you so much for sharing your experiences! I have just gotten on word press... and although its depressing reading about so many other's struggles... it is also so good to hear there are other options, solutions and more imporantly hope! Thanks again!