August 17, 2012-
It’s been a while since I’ve updated “My Life on Biologics,” so I thought I would bring everyone up to speed. July 25, 2012 was my last Humira injection. I will not be taking it anymore because it was making me sick. I never mentioned anything about the IBS issues I was experiencing in previous posts because I wasn’t really sure if it was the Humira causing my tummy issues. At first I thought it was food poisoning, then I thought maybe it was something else I had eaten (I’ve always had a sensitive stomach). As the weeks went by and the Humira injections continued, it was very evident it was indeed the Humira making me sick. I went to my rheumatologist and told him I wanted to quit taking it and didn’t want to start taking another medication right away because my tummy needed time to heal. He said okay, but wrote me a prescription for Enbrel that’s all set and ready to go in my file, so if things go downhill quickly I can go in to their office and get an injection.
Here I am, 3 ½ weeks after my last Humira injection and I’m doing okay. Just okay. The one thing I really miss about Humira was the energy it gave me. The fatigue that goes along with having any autoimmune disease is incredibly draining. I was so exhausted a few days ago I stayed in my pjs all day. I haven’t felt that wiped out in a long time.
So far the spondylitis in my lower spine has remained at bay, but my neck is another thing. I still wake up some mornings unable to turn my head, but that’s really nothing new. I have to work through the pain and the kinks, but eventually it loosens up. My psoriatic arthritis is still the same; I’m still achy and flakey and there have been several days I’ve had specific joints be extremely sore.
My tummy isn’t 100% recovered, but it feels SO MUCH BETTER. The IBS issues the Humira was causing were unbearable. I’ll spare you all of the details, but I will tell you I looked like I was 4 or 5 months pregnant because of the bloating some days. It wasn’t fun.
At this point in time, it’s my plan to try to remain Enbrel free for as long as I can. I’m just taking it one day at a time.
I’ll keep you posted.