Since writing the post on my recent diagnosis of spondylitis and my decision to start taking biologics, I’ve had many of you ask me to post updates on how I’m doing/feeling while taking them. I started a new page on my website, like a journal or “dear diary” of sorts, logging my experiences. You will find the new page called “My Life on Biologics” next to the “RECIPE INDEX” and “BLOGROLL.” I will link all of these journal entries to that page so they will be easy to find.
Sometimes I really don’t understand why God allows some of the things in life to happen, like disease, but I do know that He is faithful. I truly believe one of the reasons He is allowing me to go through this is so I can document it all… just for you.
I hope this is helpful to someone out there.
Wednesday, May 16, 2012 –
I had my first injection of Humira today. It wasn’t as bad as I thought it would be. The nurse did it using the Humira pen while I watched. She gave me the shot in my upper thigh. It burnt a little bit when the medicine was injected, but wasn’t to the point where I couldn’t stand it. I have to give myself my 2nd dose of Humira on May 30th.
Thursday, May 17, 2012-
No adverse reactions to taking Humira so far. Not even redness near the injection site! Thank God!
Friday, May 18, 2012-
For the last month I’ve been so nauseous and ill feeling (because of pain) that I haven’t been able to eat much. My sister in law made almond breaded fried rex sole (it’s a flounder type of white fish). It was sooooo good. I ate a full meal… it’s my first full meal in over a month. My husband couldn’t believe I was able to eat so much.
Monday, May 21, 2012-
I’m starting to notice a definite difference in my psoriasis patches, although they really weren’t very big to begin with. The back of my head is shedding scales and new ones don’t appear to be growing in their place. I still have some open sores, but it is better overall.
Tuesday, May 22, 2012-
The sick tummy, nausea, and loss of appetite is driving me crazy. I made ice cream today, but when it was done, I didn’t even want any. You know I’m not feeling well when I won’t even eat ice cream.
Wednesday, May 23, 2012-
I’m having a bad day today. I still don’t feel like eating much of anything and I am very sore and tired. My next injection of Humira on May 30th can’t come fast enough. I am ready to start feeling better.
Thank you for sharing with us! A journal is a great idea to chronicle your progress. I’m thinking about you – sending love and hugs. I hope tomorrow is better for you. How are you sleeping at night? Sound, restless?
I do hope you start having less bad days very soon. My thoughts and prayers are with you.
oh my gosh, i am so sorry you’re feeling so crummy — i know that’s saying it lightly. sending you good thoughts and prayers. i also have an auto-immune disease — ulcerative colitis. i’m in a flare right now and biologics are one of my treatment options. i’m going the natural route — through diet and homeopathics — its a slow go. i hope your days begin to improve.
FYI. My psoriasis was actually an allergic reaction to parabens in lotions and shampoos. Izolones are also parabens by another name. Look for a prefix to both if those, like methyl and ethyl (there are at least 6). Try it for 3 months, no lotions or shampoos or conditioners with those ingredients…. Two friends of mine also saw their psoriasis go away with this “treatment”. It’s apparently known by many dermatologists to be reactive. A man at Bath and Body Works challenged me on it once… I challenged him back with a request… Find out WHAT the base source was… It turned out to be crushed bee bodies… He apologized to me 🙂
Just three months. If it doesn’t go away or lighten up then at least you’ve tried. 🙂
And good luck with the Humira! I’ll be watching your progress.
Thanks Megan. I really appreciate you taking the time to write about your progress. I’m sure it is not the most enjoyable thing to write about. But it will definitely be a help to myself and others. 🙂
Shirley Braden (@Shirleygfe) says
Megan, I missed this new diagnosis of yours. I’m sending you tons of good thoughts and healing ones first and foremost. You have so very much going on right now. Big, big hugsssss!